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RARECast bill elder
RARECast: The First Lady’s Date who Embodied Precision Medicine

At the age of 8, Bill Elder, Jr. was diagnosed…

Denim Dash: Are YOU Ready to Run for RARE?
Beginning March 21st, supporters from all over the nation will run/walk 3.1 miles to raise money and awareness for rare disease. This is… Continue Reading
The FPIES Foundation Presents Community Opportunity for World Rare Disease Day 2015
The theme for Rare Diseases Day 2015 is “Living With a Rare Disease: Day-By-Day, Hand-in-Hand.” In honor of this, the FPIES (Food… Continue Reading
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San Francisco’s Chevy’s Fresh Mex Donates Proceeds for World Rare Disease Day
Chow down on some fresh guac, jalapeño bacon wrapped shrimp or fajita nachos while support the cause of rare disease! This World Rare… Continue Reading
Brooklyn Kelley Walk in Honor of World Rare Disease Day 2015
Looking to being awareness to Albany, Oregon during this World Rare Disease Day? Join the Brooklyn Kelley Walk! In honor of… Continue Reading
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Napa in Newport Wine Auction Features More than 20 Napa Wineries to Benefit Cure Duchenne
CureDuchenne, a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy, announced today that they… Continue Reading
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Teen With Noonan Syndrome Accepts Prom Invitation from School Football Star
Autumn Pollard was unaware that her high school hosted an annual prom until she was invited in front of the entire school. Autumn is a… Continue Reading
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Mark Cuban & Nation’s Top Four Children’s Hospitals to Host Startup Pitch Competition at SXSW Interactive
The nation’s top four pediatric institutions are coming together to host the first ever “Impact Pediatric Health Pitch Competition”… Continue Reading
Never Underestimate a RARE Kid! Joslyn Runs for GOTR
Joslyn joined Girls on the Run (GOTR) because she wanted a tutu. She had seen the girls at her school last year all wearing their tutus and… Continue Reading